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Publisher's Summary

In this landmark medical narrative, Pulitzer Prize-winning journalists Mark Johnson and Kathleen Gallagher chronicle the story of Nic Volker, the Wisconsin boy at the center of a daring breakthrough in medicine - a complete gene sequencing to discover the cure for an otherwise undiagnosable illness.
At just two years old, Nic experiences a searing pain that signals the awakening of a new and deadly disease. For years, through false starts and failed cures, he holds on to life, buoyed up by his mother's fierce drive to get him the care he needs. But when even the world's experts are stumped by Nic's illness, his doctors come up with a radical, long-shot plan: a step into the unknown.
The next major scientific frontier, following the completion of the Human Genome Project, was to figure out how to use our new knowledge to save lives - to bring genomic or personalized medicine into reality. It's a quest that is undertaken by researchers around the world. But it is only when geneticist Howard Jacob hears about young Nic that the finish line finally comes into sight: It's no longer a race to make history. It's a race to save this boy's life.
©2016 Mark Johnson and Kathleen Gallagher (P)2016 Tantor
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Customer Reviews

Most Helpful
5 out of 5 stars
By Xi on 06-24-17


Moving story about a determined mother who helped save her son. Kudos to the scientists who took the risk to bring genomics to medical treatments.

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5 out of 5 stars
By mib on 05-27-16

Gripping True Story

If you could sum up One in a Billion in three words, what would they be?

True medical suspense story by Pulitzer prize winning authors.

What did you like best about this story?

The book describes a complex medical story in a way that is understandable and very interesting,

What does Jonathan Yen bring to the story that you wouldn’t experience if you just read the book?

The ability to deliver a complex subject In an understandable way.

Any additional comments?

Great listen!!!

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