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Fascinating true story of a lovely SC family cursed with a rare and terrible genetic disease that manifests itself in middle age. Well told, kept my interest to the end. I was very anxious to hear the outcome of the screening tests that some of the family members sought and how they are trying to put an end to this tragic legacy.
I enjoy science-related books and am fond of medical "mysteries," but I found this book exceedingly slow in developing. The characters weren't as fleshed out, but at the same time I was not interested in the aside that a Kuru researcher was--much later in his career-- jailed for what I read between the lines as paedophilia. I increased the speed and managed to finish 25% of the book. At this point I'm not interested or invested in finding out what the mystery disease is.