Nearly 75 years ago, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism - by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.
It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting "refrigerator mothers" for causing autism, and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles, too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families' battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne'eman, who explained their inner worlds and championed the philosophy of neurodiversity.
This is also a story of fierce controversies - from the question of whether there is truly an autism "epidemic" and whether vaccines played a part in it to scandals involving "facilitated communication", one of many treatments that have proven to be blind alleys, to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns, too: We learn about experimenters feeding LSD to children with autism or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.
By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion but for a new understanding of autism: as difference rather than disability.
"In this compelling, well-researched book, the authors weave together the heroic search by parents for treatment and services for their children with the personal stories of a fascinating cast of characters. An invaluable guide for those dealing with autism and an inspiring affirmation of every individual's contribution to 'the fabric of humanity." (Kirkus)
"Donvan and Zucker's tremendous study keeps autism at its center while telling an extraordinary tale of social change.... Viewed as a whole, the narrative ultimately reveals a transition from an emphasis on treating individual cases to a more society-wide effort for advocacy and inclusion - an effort that this book will do much to advance." (Publishers Weekly)
"Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism. It's also something larger: a fascinating exploration of a social movement that grappled with the mysteries of mind, behavior, and the relationship between parents and children." (Walter Isaacson, author of The Innovators and Steve Jobs)
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