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This book will stay in my mind for a long time. I want to thank Shane Burcaw for his unflinching honesty about painful and intimate parts of his life. I've read a number of memoirs/autobiographies, and I don't think I've seen this level of honesty before. He's willing to discuss his insecurities, his deepest fears, his shortcomings--and also his hopes, and the people he loves--all made fascinating through the lens of a debilitating disease that affects not only him, but also his family and friends.
I'm researching SMA for a series of science fiction books I'm writing. This memoir fulfilled my research needs and then some. I feel as if I have a much better understanding of what this disease is about and how it affects those who have it.
3 of 3 people found this review helpful
Tender, touching, funny and true. This well written book will change you. I recommend it highly.
1 of 1 people found this review helpful