Jesse Cooper was an honor-roll student who loved to windsurf and write poetry. He also had severe cerebral palsy and was quadriplegic, unable to speak, and wracked by seizures. He died suddenly at age 17. In fiercely honest, surprisingly funny, and sometimes heartbreaking prose, Jesse's mother, Marianne Leone, chronicles her transformation by the remarkable life and untimely death of her child.
“A mother’s passion-filled memoir of her fight to give her disabled son the life he deserved.... Love for her son and rage at those who did not see him as worthwhile permeate the narrative, which surprises with its humor and frankness.... Leone’s character sketches are deft and humorous, and included throughout are selections of Jesse’s poetry and photographs of the boy with family and friends, attesting to a life that, though short and often painful, was filled with accomplishment, love and joy. Heartwarming.” (Kirkus Reviews)
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