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As brother-built dynasties go, the Heywoods are enthralling. Jamie, the eldest, is a charismatic compulsive talker who quits his job to cure ALS. A trained mechanical engineer, Jamie studies gene therapies and hires “guerilla scientists” to develop experimental treatments and pioneer stem-cell research. In the process, he ruins his marriage to Melinda an exuberant belly dancer with a PhD in medieval French literature.
Stephen is six-foot-three and blindingly handsome. He’s wry and observant, a self-taught architect who finds his calling rebuilding old, rotting historical homes. The worthy anchor of His Brother’s Keeper, Stephen despises pity and fuss. He marries, fathers a son, and works with his hands as long as he can. “The more he lost, the stronger he seemed,” Weiner notes of Stephen, by then, skeletal and wheelchair-bound, nourished by liquid Ensure his mother, Peggy, pours into his stomach tube. Ben is the youngest Heywood, an engineer like Jamie and their father. He’s creative and logical, a practical risk-taker as droll and dynamic as the rest of his tribe. Still, and always, though, the love story belongs to Jamie and Stephen. Nita Rao
In this dramatic and suspenseful narrative, Jonathan Weiner gives us a remarkable portrait of science and medicine today. We learn about gene therapy, stem cells, brain vaccines, and other novel treatments for such nerve-death diseases as ALS, Alzheimer's, and Parkinson's - diseases that afflict millions, and touch the lives of many more. "The Heywoods' story taught me many things about the nature of healing in the new millennium," Weiner writes. "They also taught me about what has not changed since the time of the ancients and may never change as long as there are human beings - about what Lucretius calls 'the ever-living wound of love".
100 Notable Books, The New York Times
10 Best Nonfiction of the Year, Entertainment Weekly
Los Angeles Times Book Prize Finalist
"Weiner has a master's eye for the telling detail and a spare, often poetic style. His terse recounting of the seminal advances and setbacks in genetic engineering in the late 1990s provides the scientific counterpoint to the Heywood family drama." (The Washington Post)
Customer ReviewsMost Helpful
By Barbara on 02-02-10
Well done portrayal of a family in crisis
A well written book about a family racing for a treatment for a family member diagnosed with ALS.
It is a sad and at time disturbing portrayal of a brother trying to find a way to use "gene" therapy and/or stem cell therapy to cure his dying brother, while struggling with the temptation to develope a business with these therapies. The book examines the patient,family, friends; their interactions, support and always,their hope. Mr. Bevine is an excellent narrator making the book all the better.
6 of 6 people found this review helpful
By Doggy Bird on 03-17-13
Fascinating story, very good narration
I so much enjoyed THE BEAK OF THE FINCH, Jonathan Weiner's book on the studies done on the Galapagos Islands of Darwin's finches that I did not hesitate to try this examination of a brother's struggle to find a cure for Amytrophic Lateral Sclerosis, or ALS also commonly known as Lou Gehrig's disease. It is a subject of particular interest to me as my own mother died of ALS when she was only 52. The story examines not only the tragedy of neuro degenerative diseases, but the ethical struggles that accompany this brother's search for funding and a cure for his sibling's illness. There is also running through the book Weiner's own mother's discovery of and death from a neuro-degenerative disease.
The book was well narrated and held my interest, but didn't have the same impact of Weiner's first book, perhaps because the work in the book is not as successful or heroic as the Beak of the Finch. That said I did find the story worthwhile. particularly from the perspective of the ethical dilemmas presented and I do think it would be of interest even to those without a personal connection to these diseases. I would recommend the book to non-fiction readers who find the progress (and sometimes the setbacks) of medical science of interest as it is very well written and the reader does an excellent job.
2 of 2 people found this review helpful